This is a voluntary patient association for people in Denmark with albinism, their relatives and others interested in the condition. It was founded in 1996 by a group of parents of young children with albinism and a few adults with the diagnosis.
Every year it holds events that strengthen the community and share knowledge. It informs the public about life with albinism, has featured in magazines and TV programmes, and takes part in school projects. Members receive a quarterly newsletter and can join an annual autumn trip. You can join through the website, which is in Danish and English.
